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| "2016_les_besoins_et_les_difficultes_des_aidants_familiaux_de_person", | | "2016_les_besoins_et_les_difficultes_des_aidants_familiaux_de_person", |
| "notes": "Le volet polyhandicap de la strat\u00e9gie quinquennale | | "notes": "Le volet polyhandicap de la strat\u00e9gie quinquennale |
| (2017-2021) d\u00e9finit les principaux enjeux pour am\u00e9liorer | | (2017-2021) d\u00e9finit les principaux enjeux pour am\u00e9liorer |
| l'accompagnement et la qualit\u00e9 de vie des personnes | | l'accompagnement et la qualit\u00e9 de vie des personnes |
| polyhandicap\u00e9es. Une premi\u00e8re \u00e9tude lanc\u00e9e en 2017 | | polyhandicap\u00e9es. Une premi\u00e8re \u00e9tude lanc\u00e9e en 2017 |
| sur le territoire normand a permis d'identifier le parcours des | | sur le territoire normand a permis d'identifier le parcours des |
| personnes en situation de polyhandicap avec en parall\u00e8le, un | | personnes en situation de polyhandicap avec en parall\u00e8le, un |
| groupe de travail r\u00e9gional anim\u00e9 par l'Agence R\u00e9gionale | | groupe de travail r\u00e9gional anim\u00e9 par l'Agence R\u00e9gionale |
| de la Sant\u00e9 de Normandie mobilis\u00e9 sur cette | | de la Sant\u00e9 de Normandie mobilis\u00e9 sur cette |
| t | th\u00e9matique.\r \r\rC'est dans ce contexte que l'ARS Normandie a | t | th\u00e9matique.\r\n \r\n\r\nC'est dans ce contexte que l'ARS |
| sollicit\u00e9 l'ORS-CREAI Normandie en pour r\u00e9aliser un | | Normandie a sollicit\u00e9 l'ORS-CREAI Normandie en pour r\u00e9aliser |
| recensement des besoins et des difficult\u00e9s des aidants familiaux | | un recensement des besoins et des difficult\u00e9s des aidants |
| de personnes polyhandicap\u00e9es en Normandie. L'\u00e9tude s'est | | familiaux de personnes polyhandicap\u00e9es en Normandie. L'\u00e9tude |
| attach\u00e9e \u00e0 apporter un regard sur la situation des aidants | | s'est attach\u00e9e \u00e0 apporter un regard sur la situation des |
| familiaux et de leur proche en identifiant les besoins et les actions | | aidants familiaux et de leur proche en identifiant les besoins et les |
| \u00e0 cibler en direction des aidants familiaux.\r \r\rCette | | actions \u00e0 cibler en direction des aidants familiaux.\r\n |
| d\u00e9marche s'est appuy\u00e9e sur le retour d'exp\u00e9rience des | | \r\n\r\nCette d\u00e9marche s'est appuy\u00e9e sur le retour |
| aidants familiaux sur le parcours de soins, les aides \u00e0 la | | d'exp\u00e9rience des aidants familiaux sur le parcours de soins, les |
| communication, le projet de scolarisation, le cadre de vie et la | | aides \u00e0 la communication, le projet de scolarisation, le cadre de |
| mobilit\u00e9 de la personne aid\u00e9e, mais \u00e9galement sur leur | | vie et la mobilit\u00e9 de la personne aid\u00e9e, mais \u00e9galement |
| situation personnelle et leur r\u00f4le d'aidant familial.\r \r\rA | | sur leur situation personnelle et leur r\u00f4le d'aidant |
| partir des donn\u00e9es recueillies, plusieurs pr\u00e9conisations ont | | familial.\r\n \r\n\r\nA partir des donn\u00e9es recueillies, plusieurs |
| \u00e9t\u00e9 formalis\u00e9es sur les notions d'accessibilit\u00e9 | | pr\u00e9conisations ont \u00e9t\u00e9 formalis\u00e9es sur les notions |
| aux informations et aux droits, sur l'accompagnement | | d'accessibilit\u00e9 aux informations et aux droits, sur |
| pluridisciplinaire des personnes en situation de polyhandicap et des | | l'accompagnement pluridisciplinaire des personnes en situation de |
| aidants familiaux ainsi qu'une visibilit\u00e9 des ressources | | polyhandicap et des aidants familiaux ainsi qu'une visibilit\u00e9 des |
| mobilisables sur le territoire.", | | ressources mobilisables sur le territoire.", |
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| "state": "active", | | "state": "active", |
| "vocabulary_id": null | | "vocabulary_id": null |
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| "name": "difficult\u00e9s", | | "name": "difficult\u00e9s", |
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| "name": "normandie", | | "name": "normandie", |
| "state": "active", | | "state": "active", |
| "vocabulary_id": null | | "vocabulary_id": null |
| }, | | }, |
| { | | { |
| "display_name": "personnes polyhandicap\u00e9es", | | "display_name": "personnes polyhandicap\u00e9es", |
| "id": "30eb3b05-ead1-46b3-9460-fa12f5a1eed0", | | "id": "30eb3b05-ead1-46b3-9460-fa12f5a1eed0", |
| "name": "personnes polyhandicap\u00e9es", | | "name": "personnes polyhandicap\u00e9es", |
| "state": "active", | | "state": "active", |
| "vocabulary_id": null | | "vocabulary_id": null |
| }, | | }, |
| { | | { |
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| "id": "f3de14c1-f18a-4200-be39-2b47e60c8dc5", | | "id": "f3de14c1-f18a-4200-be39-2b47e60c8dc5", |
| "name": "polyhandicap", | | "name": "polyhandicap", |
| "state": "active", | | "state": "active", |
| "vocabulary_id": null | | "vocabulary_id": null |
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| ], | | ], |
| "title": "Les besoins et les difficult\u00e9s des aidants familiaux | | "title": "Les besoins et les difficult\u00e9s des aidants familiaux |
| de personnes polyhandicap\u00e9es en Normandie", | | de personnes polyhandicap\u00e9es en Normandie", |
| "type": "dataset", | | "type": "dataset", |
| "url": | | "url": |
| /2016_les_besoins_et_les_difficultes_des_aidants_familiaux_de_person", | | /2016_les_besoins_et_les_difficultes_des_aidants_familiaux_de_person", |
| "version": "" | | "version": "" |
| } | | } |
cbelamri: